Building Canada’s Trusted Data Sharing Framework
ODINsight is building the trust and market infrastructure that lets private health data holders collaborate safely: an independent data trust backed by real operational controls, and a discovery platform where data can be found, valued, and shared responsibly.
A Trust and Visibility Gap
Canada's health sector holds vast, valuable, and largely untapped data, with the potential to accelerate research, improve care, and support responsible AI innovation. Canada risks falling behind in health AI, not for lack of data, but because sharing it is hard.
Access processes are defensive by default, agreements are negotiated one relationship at a time, and delays are measured in months or years. Institutions often cannot see the value of what they hold, and researchers cannot find the data they need.
Locked in Silos
Data is fragmented across institutions and systems. Identifying, extracting, and curating it is complex, slow, and costly.
Defensive by Default
Cautious access processes and unclear rules mean requests can take months or years, when they succeed at all.
A Trust Gap with Industry
Ecosystem participants lack a trusted way to find and contract with each other, so data sharing with industry often simply does not happen.
Value No One Can See
Data holders may not know what their data is worth to others, and data requestors cannot find the data they seek.
Canada's First Private Data Exchange Consortium
ODINsight is a Canadian private data exchange consortium designed to support secure, privacy-preserving collaboration across organizations.
We are building two things together: a data trust, in which participating organizations commit to common principles backed by real operational controls, and a discovery platform that makes data visible and valuable without unnecessary movement of sensitive information.
Built on the principles of data sovereignty and privacy by design, ODINsight represents a new approach to health data collaboration: one where innovation and privacy protection work hand in hand.
An Independent Data Trust
A data trustee administers and oversees sharing on behalf of contributors, under clear fiduciary duties.
Privacy-Preserving
Data stays in its holders' possession with appropriate controls, access rules, and oversight.
Policy-Supported
Participants are supported by clear governance, review, and compliance processes.
AI-Enabled Insights
Responsible analytics can help identify research opportunities while keeping privacy and compliance at the centre.
Complementary by Design
Canada's health data ecosystem already has platforms, registries, and access initiatives doing important work. ODINsight is designed as a trust and discovery layer across that infrastructure, not a replacement for it.
- ODINsight is not: Another centralized data platform or repositoryODINsight does: Indexes and securely connects the data infrastructure institutions already have
- ODINsight is not: A competitor to existing data access initiativesODINsight does: Complements and interoperates with initiatives already underway
- ODINsight is not: A pipeline that moves or duplicates data by defaultODINsight does: Keeps data in providers' possession; only visibility is centralized
- ODINsight is not: A one-size-fits-all access modelODINsight does: Tailors provisioning to each use case, matched to its privacy and security needs
Bill S-5
Connected Care for Canadians Act
Interoperability by Default
Health information technology must support secure, standards-based exchange of electronic health information.
Data Blocking Prohibited
Vendors are barred from practices that prevent or restrict authorized access to health information.
Person-Centred Access
Patients and their care teams gain easier, more complete, and secure access to health information.
Pan-Canadian Alignment
Complements provincial health information law and the national interoperability work already underway.
Bill S-5 & Connected Care
Bill S-5, the Connected Care for Canadians Act, is federal legislation designed to let electronic health information move securely between the systems that hold it, and to stop health IT vendors from blocking that exchange. Reintroduced in February 2026, it signals where Canadian health data policy is heading: interoperable by default.
Interoperability makes data easier to move. It does not, on its own, make sharing trusted. ODINsight is being designed as the trust and governance layer that builds on this foundation, keeping data access, sharing, and analytics aligned with PIPEDA, provincial health information acts such as PHIPA, and pan-Canadian interoperability efforts.
We actively monitor Canadian privacy, data governance, and regulatory developments so participants can work within a supported and compliant framework.
What We Can Do for Canada
ODINsight is more than a platform. It is a national collaboration framework designed to help unlock the potential of Canadian health data while maintaining trust, privacy, and responsible governance.
Accelerate Health Research
Enable researchers to work with broader, more representative data in a responsible way.
Support Innovation
Help Canadian organizations contribute to new discoveries, tools, and health technologies.
Strengthen Public Trust
Earn social license through transparent governance and real outcomes: diagnoses accelerated, care improved.
Enable Global Collaboration
Create secure pathways for research partnerships while maintaining Canadian data sovereignty.